Showing posts with label Anoxic Brain Injury. Show all posts
Showing posts with label Anoxic Brain Injury. Show all posts

Thursday, February 23, 2012

To Wheat Or Not To Wheat?

 To Wheat Or Not To Wheat? That is my question.

 I have been making whispers lately about anoxic brain injury (ABI) following post-cardiac arrest, and a similarity with autistic conditions - especially Asperger's Syndrome.
Honestly, I am as fully unqualified to speak about this, as I am fully convinced that I have EXACTLY the same "Asperger experience" as a pre-school boy whom I know quite well. (Yes, as unqualified a "quack" as I may be, I have assumed the diagnosis of Asperger's Syndrome for both him and me. And I am not ashamed.)

Here's a link to to a description of Asperger's:
http://en.wikipedia.org/wiki/Asperger_syndrome

  It's becoming quite a common occurrence and you may want to read up on it. Maybe some child in your life, or in your own past, wasn't as much a "behavior problem" as you were led to believe. I have found access to a nursing course on this subject and I am trying to learn what I can. However, my own ABI makes this learning difficult for me, especially in the areas of memory retention, and the motivation to even do it at all. At the same time, I feel so fiercely determined to get this accomplished that you might say I'm becoming obsessed with it.
So, the likeness of Asperger's is asserting itself.

  Why is this important to me? Because in addition to wanting to rescue our little children from what seems to be a coming plague, I'd like to know that there is a definite way to treat ABI. For four years, I've been limping along like a Civil War soldier after the surrender. My own battle began with a Sudden Cardiac Arrest, when I was snatched up by Death, like a mouse in the talons of a Dark Owl. It was a surprise attack - viscious, too - and my response could not have been wimpier. It just took me... and took my life away. The fight began weeks later when I arose alive from my hospital bed to return home the winner, but terribly injured and bruised. When my heart had stopped, I was left with a brain injury from lack of oxygen.

  So, before this short writing becomes an "encyclopedia", let me bring us back to the title, and the reason for the word "Wheat" being so prominent.
Wheat contains a lot of life-sustaining protein. I suppose it keeps half the world alive. There is hardly a place in our human body where this protein isn't vitally important. In wheat, this protein is a two-part protein and is usually called "gluten" [GLOO-tin]. Rice has gluten as do other grains, but they are not of wheat's "double variety".

  Apparently, something about this vitally important wheat-gluten is becoming a digestive issue with the children of our species. When it isn't processed normally, in the intestines, it gets into the blood and causes havoc with the body. The main feature of this is problems with BRAIN functions. In other words, it can provoke mood changes, disrupt thought patterns, and even lead to seizures. For some, with Celiac Disease, it can be deadly. Thankfully, I am not troubled with that.

  It's just that this little boy I know, and love more than my own life, has apparently been harrassed by this bully named Gluten for a long time. When problems with behavior became intolerable, and seizure activity became visible, his parents, wisely and bravely, removed as much wheat-gluten from his diet as possible. With them, I am learning to make bread and other good things without the wheat-gluten. Let me just tell you that his behavior has improved so much that it's hard to believe he has been only one child through it all. His good ol' self is becoming visible, again. It's startling that it hasn't taken years, nor even months, for this positive change to take place... but the improvement was obvious in a matter of days. After four to six weeks, it's looking like wheat-gluten isn't the bully that many are saying it is. Something else has caused underlying problems, of which we are not yet aware. But one thing is ABSOLUTELY CERTAIN - wheat-gluten cannot be tolerated by his personality. In other words, he needs the life-giving protein but can't live with it. So for now, it's strange breads and even stranger trips to the grocery store; hunting for, and gathering, "safe foods" for him to eat. But happily, he is regaining the once healthy appetite which he had completely lost. And not a day too soon, either, because he has become "skinnier" over time and the effect of under-nutrition on body organs can't be good.

  We hope that the health professionals we will be seeing soon, can remove this impediment to his happiness.


- - - - - - - - - - - - - - - - -

Monday, September 26, 2011

Dead Or Alive

 Well, it's the day I've long awaited - April 19.

 Long awaited because I didn't know if would live long enough to see this day.
Months ago I began having chest pains (angina), and I've gained a lot of
weight. I was concerned that I wouldn't be here to celebrate my 3rd New-Birth
Day. But here I am and I'm quite alive.

 Three years ago, on April 6, 2008, I fell victim to a Sudden Cardiac Arrest.
Not many will believe that I actually died and stayed dead for some time, but
it's true. On April the 19th, I was in the hospital intensive care unit and they
were getting ready to pull out my breathing tube (E.T. tube), thus disconnecting
me from my ventilator. The fear was that I would thrash around, unable to
breathe, and they wouldn't be able to reinsert the tube. Therefore, I would die.
I've always wondered if they liked me at all because they just went ahead and
pulled out the tube, anyway! The staff called this, "Pull and Pray". (Now
THAT's a confidence builder.)

 Well, long story short, God liked me more and made me breathe again. I remember
a moment of anguish and confusion (when the tube was out), and then a gasp, and
then I was breathing on my own. Alive again. I have named that day, my
New-Birth Day.

 I've heard that some are nearly silly with joy after such a miracle, while
others are simply grateful to be alive. And a few would rather be back in the
spiritual place in which they were, while in a coma.

 The reason I'm NOT feeling overjoyed is that there are so many 'survivors' who
remain in a coma or coma-like state. They may remain that way, totally disabled
and totally dependent upon the care of others. To make this even worse, family
members are among the others. It seems that more and more families are being
advised to disconnect the ventilator, or stop the tube-feeding, or just let the
pneumonia rage until the patient is dead.

 Well, if they don't agree to killing their loved one, then that loved one
likely will not be treated as a fully living person, ever again. We could say,
never again be treated as a full citizen.

 Medical decisions, made more for the convenience of the medical facility than
for the good of the patient, will likely keep this poor soul in such a disabled
state for months or years.

FINAL INSULT
may have horrible bedsores that open the flesh to the bone.

 Next, some doctor with the backing of the insurance company, will work at
making the family feel guilty for the suffering of their loved one. In other
words, it's the family's fault for not "letting the person go" much earlier.
This is the last, big attempt to get them to agree to euthanasia (legalized
killing). If not, then the facility will begin refusing to care for the patient,
and the family will have to take over the care at home - something that they can
almost never do.

 Well, I was in a coma but only for 13 days. After that, I was mentally disabled
for a month and a half due to the anoxic brain injury. Anoxic means that my
brain was deprived of oxygen for at least 15 minutes, while my heart was not
beating - starting at the moment of my cardiac arrest.

 Now, being something of a "miracle man" myself, I've been told that I should be
so happy to be alive. Well, I am... sort of.
Someone else said that I have "survivor's guilt". Well, I don't... not much.

 I'll tell you what it is. I feel OUTRAGED that so many of my fellow "survivors"
are being treated this way. I hope their families will agree to let me tell
their stories here on this site, so that you can hear, first-hand, about the
anguish that this is causing families all over this countr

 No doubt, some think that when the emergency crew arrived at my house and found
me on the floor after a Sudden Cardiac Arrest, with the near certainty of an
Anoxic Brain Injury, that they should not have tried to revive me, at all.
Rather, that they should have taken my body to the nearest hospital, covered it
with a sheet, and declared me, "Dead On Arrival".

 - - - - -

Originally published by me on Wed April 20, 2011

This article also appears on '- Surviving Cardiac Arrest - rturri'



2 comments:

Marty said...

    I am honored to know you.
    I am so glad you are here to write - including the fury.
    May 1, 2011 7:46 PM

Marty said...

    I hope you don't mind, but I posted a link to this post on my facebook page.
    It should be read.
    May 1, 2011 7:50 PM